SHWACHMAN-DIAMOND SYNDROME REGISTRY

Accelerating research to find a cure for SDS

Announcements

Share your Experience! –

See Why Your Voice Matters

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OUR MISSION

The Shwachman-Diamond Syndrome (SDS) Registry is committed to accelerating the pace of discovery for treatments and therapies of SDS. The Registry provides access to clinical expertise as well as cutting-edge research.

SAMPLES & RECORDS

Every patient's experiences and samples hold vital clues to advance our understanding of SDS. The SDS Registry enables patients to share their medical information and samples with researchers working to cure SDS.

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QUESTIONS?

Physicians, families, or patients with questions about SDS are welcome to contact our medical team.

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WHO IS INVOLVED?

435
SDS Registry Participants

125
SDS Registry
Family Members

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Contact Us

Please fill out this form or click below so that we can set up a time to discuss the registry with you. We look forward to answering any questions you may have and getting you enrolled!

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