SHWACHMAN-DIAMOND SYNDROME REGISTRY

Accelerating research to find a cure for SDS

Announcements

Were you unable to attend SDS Family Day 2024?

No problem! Check out the recordings from each talk:

Upcoming SDS Registry Events:

SDS Congress 2025

The 11th International SDS Congress will be held June 5-8, 2025, in Cincinnati, Ohio. SDS experts from around the world will present their newest research to both the scientific community and families.

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OUR MISSION

The Shwachman-Diamond Syndrome (SDS) Registry is committed to accelerating the pace of discovery for treatments and therapies of SDS. The Registry provides access to clinical expertise as well as cutting-edge research.

SAMPLES & RECORDS

Every patient's experiences and samples hold vital clues to advance our understanding of SDS. The SDS Registry enables patients to share their medical information and samples with researchers working to cure SDS.

Send samples

QUESTIONS?

Physicians, families, or patients with questions about SDS are welcome to contact our medical team.

OUR CLINICAL CENTERS

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Learn About the SDS Registry

Contact Us

Please fill out this form or click below so that we can set up a time to discuss the registry with you. We look forward to answering any questions you may have and getting you enrolled!